Bandaides and Blackboards
Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories.
Adolescents Psychological Complications of Chronic Illness
Information from The Child Health Library of Children's Hospital of Pittsburgh.
The Child With a Long-Term Illness
AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
Children and Grief
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
Chronic Illness: New and Old Ideas to Care for Children
Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project. [PDF]
Dealing With a Health Condition
Explains teenagers how to cope, to take control, deal with others.
Living with Childhood Illness and Disability
Resources page by the Center for Children with Special Needs includes handouts on safety, Disability Act, school preparation, the Internet.
Pain and Chronic Illness in Children
Short paper on the importance of pain management. [PDF]
Promoting Resilience in Youth with Chronic Conditions and their Parents
Paper on family centered care, describes impact, principles, assessment, healthy family functioning. [PDF]
Shared Vision
Complete article (also as PDF) on longterm needs, financial and medical planning.
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